Genetic Disorders UK is a registered charity with a vision to improve the lives of individuals and families affected by genetic disorders.
Our mission is to be the leading source of information and support for both those affected by a genetic disorder, and the charities and patient groups that support them, by bringing together everyone’s combined experience in a place it can be shared.
Genetic Disorders UK is run by a small team that also organises the annual Jeans for Genes Day fundraising event
Our website content is written by individuals who are either affected by a genetic disorder themselves or are in a family affected by a genetic disorder.
We offer a wide range of advice and support for parents, networks and those affected by conditions. For more information about our services and work please visit our website.