The Project promotes public and professional awareness of Sickle Cell, Thalasaemia and related blood disorders in order to enable the development of an effective and efficient service for individuals, their families and the Community as a whole.
It increases awareness by developing and providing comprehensive education and training programmes for carers, community groups and relevant professionals.
Offers counselling and advice to people living with Sickle Cell and Thalasaemia and their families or carers.
Co-ordinates and supports both universal and voluntary screening programmes.
Provides support, advice and co-ordination of care to individuals and families where there is a major haemoglobin disorder. To develop robust community development activities to promote and support the affected communities.
Encourages the development of networking in order to obtain support for clients.
Provides outreach support to service users in their home and support through the discharge process from a stay in hospital. To ensure social and psychological support is accessed for the benefit of the affected individuals and their carer’s.
Works closely with relevant Local Authority Departments, Clinical Commissioning Group, other local voluntary and statutory bodies, and seek to establish links with regional and national bodies involved in the development of Sickle Cell & Thalasaemia services.
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