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Wolverhampton Information Network

UNIQUE (Rare Chromosome Disorder Support Group)

Discovering that you or your child has a rare chromosome disorder or an autosomal dominant single gene disorder causing your child's learning disability, developmental delay and maybe other symptoms can come as a great shock. You might be feeling a mixture of emotions; sadness, confusion, numbness, anger, guilt, "why me?", isolation, bewilderment and very often a sense of grief for the child you had anticipated. 

Unique provides much needed help and information to those caring for a family member with a rare chromosome disorder. These lifelong disorders affect 1 in 200 live-born babies and those affected are often sick and severely disabled, unable to walk or talk. 

Our mission is to inform, support and alleviate the isolation of anyone affected by a rare chromosome or autosomal dominant single gene disorder and to raise public awareness.

We have a large network group of parents and professionals all with a common cause, to help others. Parents of affected children should register by visiting our website or emailing us. 
Further information can be found on our Unique Facebook page.

Who to contact

Telephone
Helpline: 01883 723356
E-mail
info@rarechromo.org
Website
UNIQUE

Record Last Updated on: 01/02/2021

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