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Wolverhampton Information Network

Nystagmus Network

The Nystagmus Network is a registered charity in England and Wales supporting people living with nystagmus.

Nystagmus is a complex eye condition, characterised by involuntary movements of the eye. The eyes appear to wobble or flicker from side to side, up and down or round and round. Nystagmus causes impaired vision, affecting the ability to focus, speed and depth perception and facial recognition. At least 1 in 1,000 people are born with nystagmus and many more acquire the condition later in life.

The charity was founded in 1984 by Vivien Jones after her son was diagnosed with nystagmus when he was three months old. It has grown exponentially from very humble beginnings to the hi-tech digital online presence of today.

The Nystagmus Network provides support and information, promotes a better understanding of nystagmus through an annual Nystagmus Awareness Day on 20th June and throughout the year and funds research to find effective treatments. Through its support services, the Nystagmus Network ensures that, following diagnosis, there is somewhere for a family to turn to.

For more information, please visit our website or contact us.

You can follow and support us via our Social media channels.

Who to contact

Contact Name
Sue Ricketts
Contact Position
Executive Information and Development Manager
Support Line: 01427 718093
Nystagmus Network

Where to go

Contact Address:
Nystagmus Network
70 Hyde Vale
SE10 8HP

We operate an online service via telephone, email and website where support is available 24/7.

Time / Date Details

When is it on
Office hours Monday - Friday 9.00am - 5.00pm.
Session Information
Monthly zoom meetings and telephone access via the support line.
Website support is available throughout the year.

Other Details


Age Ranges
Referral required
Referral Details

It is possible to self refer to us; please make contact via email or telephone.

Record Last Updated on: 27/05/2021

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