This service aims to care and support children, young adults and their families from the Wolverhampton area with a Wolverhampton GP or select neighbouring Integrated Care Board (ICB) who have a life limiting illness and wish to be cared for at home. Most people accessing these services will already be known to the Paediatric or Adult Community nursing team.
All staff have a Children’s Nurse Qualification, and additional training in looking after children with Palliative care support needs.
We recognise that talking about life limiting illness and planning future care needs is never easy, particularly when it concerns the care of children and young adults. Some of these services cater specifically for children and young adults who are coming to the final stage of their illness and are in the last few weeks of their lives. We want to offer the child/young person nursing care and support that allows them to remain at home for as long as they can with their families. Being cared for at home allows young people to participate in family life and remain close to parents and siblings.
Palliative Care offered by the Children’s Community Nursing Service includes:
- Nursing care and support to young people and their families in their own home
- Meeting the specific needs of young people and their families through establishing an open, honest and empathic relationship
- An assessment to determine the physical, social, emotional and spiritual needs of the young person and their family. The focus will be on the enhancement of quality of life through this difficult and emotional time
- Advice and information, ensuring young people and their families/carers understand what nursing care is being provided and why it is being provided. We offer advice and information face to face or over the telephone
- The identification of a named nurse who will co-ordinate each young person`s care to ensure that all the appropriate services are involved.
- Provision of emotional support to help each young person and their family through this very difficult and traumatic time.
- Working as part of a Multidisciplinary team (including physiotherapy, occupational therapists, GPs, Paediatric consultants etc.
Who can use the service?
- For Children aged 0-18 yrs the Children's Community Nursing service operates from the Gem Centre and is available from 8.30 am to 5.00 pm Monday to Friday and available on the weekend if assessed as required.
- For young adults aged 16-18yrs the Children's Community Nursing team operates as above and works jointly with the Adult Community Nursing Service to provide a service.
- For young adults aged 18-24yrs the Adult Community Nursing Service provide a 24/7 service. Young people and their families can also contact a dedicated phone line for urgent concerns.
The service provided to the child and their family will be made following an assessment by the Children's Community Nursing team or Adult Community Nursing Team. The assessment will put the child or young person and their family at the centre of the decision making process through joint discussions with nursing and medical teams.
This service attempts to adhere to the young person's wishes and in cases of disagreements, discussions will take place and different options will be explored. Our aim is to offer the best care at this difficult time.
Decisions about who can access the service will be made following a referral to the team by health care professionals already involved in the care of the child/young person. The most appropriate team will then undertake an individual assessment and work closely with the young adult and their family to provide palliative care at home.
The views of children and young people are taken via a service questionnaire yearly and individual feedback and comments in Gem Centre outpatient clinics. There are also citywide surveys undertaken on young people by the Local Authority which includes views on the School Nursing Service in Green Park and Penn Hall school.
There is an interpreter service available for staff to communicate with people whose first language is not English. There are also leaflets available in other languages if required.