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Wolverhampton Information Network

Palliative Care Service

About the service

We recognise that talking about life limiting illness and planning future care needs is never easy, particularly when it concerns the care of children and young adults. Some of these services cater specifically for children and young adults who are coming to the final stage of their illness and are in the last few weeks of their lives.

We want to offer the child/young person nursing care and support that allows them to remain at home for as long as they can with their families. Being cared for at home allows young people to participate in family life and remain close to parents and siblings.

This service aims to care and support children, young adults and their families from the Wolverhampton area with a Wolverhampton GP or select neighbouring Integrated Care Board (ICB) who have a life limiting illness and wish to be cared for at home.

The service is available for

  • Children aged 0-18, the Children's Community Nursing service operates from the Gem Centre and is available from 8.30 am to 5.00 pm Monday to Friday and available on the weekend if assessed as required.
  • Young adults aged 16-18, the Children's Community Nursing team operates as above and works jointly with the Adult Community Nursing Service to provide a service.
  • Young adults aged 18-24, the Adult Community Nursing Service provide a 24/7 service. Young people and their families can also contact a dedicated phone line for urgent concerns.

What we do

All staff have a Children’s Nurse Qualification, and additional training in looking after children with Palliative care support needs. The focus will be on the enhancement of quality of life through this difficult and emotional time.

Palliative Care offered by the Children’s Community Nursing Service includes:

  • Nursing care and support is provided to young people and their families in their own home
  • The identification of a named nurse who will co-ordinate each young person`s care to ensure that all the appropriate services are involved.
  • Meeting the specific needs of young people and their families through establishing an open, honest and empathic relationship
  • An assessment to determine the physical, social, emotional and spiritual needs of the young person and their family.
  • Advice and information face to face or over the telephone, ensuring young people and their families/carers understand what nursing care is being provided and why it is being provided.
  • Provision of emotional support to help each young person and their family through this very difficult and traumatic time.
  • Working as part of a Multidisciplinary team (including physiotherapy, occupational therapists, GPs, Paediatric consultants etc.

End-of-life care at home

  • Nursing care and support is provided to young people and their families in their own home. The service provided is an 8.30am -18.00pm service 7 days a week.
  • If you have a personalised budget allowance, you will need to discuss your needs with the service lead and this will be agreed on the level of service we can offer on a case by case basis.
  • We also provide a 24 hour end-of-life service for the appropriate families. This is with support and collaboration from Acorns Childrens Hospice at Walsall Acorns Children's Hospice | UK Children's Charity
  • We work in collaboration with Compton Care for those children and Young people in transition to adult services who are palliative/end-of-life Compton Care | Care & Support for families living with life limiting conditions

How to give a compliment or compliant about the service

The views of children and young people are taken via a service questionnaire yearly and individual feedback and comments in Gem Centre outpatient clinics. There are also citywide surveys undertaken on young people by the Local Authority which includes views on the School Nursing Service in Green Park and Penn Hall school.

The Royal Wolverhampton NHS Trust service feedback can be provided by visiting Compliments, Suggestions and Complaints (royalwolverhampton.nhs.uk)

Who to contact

Telephone
01902 444700
0121 612 4110
E-mail
bcicb.time2talk@nhs.net
Website
Black Country Integrated Care Board (ICB)

Where to go

Name
Children’s Community Nursing Service
Address
The Gem Centre
Neachells Lane
Wednesfield
Wolverhampton
West Midlands
Postcode
WV11 3PG

Time / Date Details

When is it on
Monday to Friday 8.30am -17.00pm

Other Details

Costs

Details
No costs for patients

Availability

Age Ranges
Palliative Care Service – 0-18 years
Referral required
Yes
Referral Details

How to access the service 
For children and families who want to access our services, please speak to your paediatric community Consultant or your GP who can refer into the service. Most people accessing these services will already be known to the Paediatric or Adult Community nursing team.

Record Last Updated on: 10/11/2023

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